Patient’s Corner
Why Are Black Women Still Dying at Higher Rates Than White Women From Breast Cancer?
Rev. Tammie Denyse, MDiv, MCL, as told to Jo Cavallo
What is so dismaying to me is that the statistic on survival for Black women with breast cancer has not changed since I was diagnosed with breast cancer 17 years ago. In 2005, Black women were 41% more likely to die of the disease than White women, even though Black women are less likely to be diagn...
Having Metastatic Breast Cancer Has Led Me to Focus on What Matters
Reverend Tawana Davis, PhD, as told to Jo Cavallo
Nothing can really prepare you for cancer, but it helped that I have dedicated my life in service to others as a minister and advocate for social justice and health equity in breast cancer survivorship. Before my own breast cancer diagnosis in 2016, I had spent years as a volunteer for several breas...
I Enrolled in the WISDOM Study and Learned I Am at High Risk for Cancer
Sally Luckett, as told to Jo Cavallo
I have always been interested in volunteering my services and helping others, so when I got an e-mail asking if I’d like to participate in the WISDOM (Women Informed to Screen Depending on Measures of Risk) study (www.thewisdomstudy.org) I signed on. The study plans to enroll 100,000 diverse women f...
Grieving the Loss of Sexual Intimacy as a Result of Cancer and Its Treatment
Aaron Martin as told to Jo Cavallo
About 5 years ago, I began experiencing some digestive issues that I initially blamed on the stress from coping with my mother’s diagnosis of Alzheimer’s disease. But after 2 weeks of unrelenting symptoms, including abdominal pain, a change in my bowel habits, and rectal bleeding, I saw my primary c...
As a Black Woman, I Knew I Had to Advocate for the Best Breast Cancer Care
Shannon Coleman, MA, as told to Jo Cavallo
When I got the call from the radiology department telling me I had to come back for a follow-up mammogram right before Christmas of 2020, I wasn’t surprised or initially concerned. I have dense breasts, and my first mammogram 2 years earlier had also detected suspicious areas in one of my breasts th...
After Two Cancer Diagnoses, I’m Grateful for Another Day
Loriana Hernandez-Aldama, as told to Jo Cavallo
The start of January 2014 was filled with excitement. I was undergoing fertility treatments to have a second child and was living my professional dream. I was a network news anchor and medical news reporter for a national broadcast network. Although I was exhausted from my grueling early morning sch...
Cancer Has Made Me a Risk-Taker, and That’s Good
Tiffany Fagnani, RN, as told to Jo Cavallo
In 2017, I was caring for my brother, who was suffering from respiratory failure due to complications from cerebral palsy, and working full-time as a registered nurse. I was feeling overwhelmed and exhausted all the time. I was also losing weight at an alarming rate—more than 70 pounds in just a yea...
I Don’t Know Why I Got Young-Onset Colorectal Cancer
Diego Davis-Olegário, as told to Jo Cavallo
Throughout my adolescence and early adulthood, I had been plagued with digestive issues, including bouts of gastritis and constipation, which seemed normal for me and wasn’t too concerning. But by the time I turned 30, in 2015, the acid reflux I had been experiencing became so frequent and uncomfort...
I’m Living—and Thriving—With Stage IV Non–Small Cell Lung Cancer
Janet Wohlmacher as told to Jo Cavallo
A diagnosis, in 2020, of stage IV adenocarcinoma non–small cell lung cancer (NSCLC) was found accidentally. I was 55 at the time and in the best physical shape of my life. I had spent the previous year and a half on a diet and exercise regimen that had rendered me 35 pounds lighter and feeling healt...
From Cancer Survivor to Citizen Astronaut
HAYLEY ARCENEAUX, AS TOLD TO JO CAVALLO
When I was diagnosed with osteosarcoma of my left femur nearly 20 years ago, I remember telling my parents that I didn’t want to die. The diagnosis was terrifying because all the people I knew who had cancer had passed away, and I thought this cancer would kill me, too. That evening, my dad went onl...
The Worst Part of Having Cancer Was the Guilt
Tonie Forster, RN, PMHNP, DNP, as told to Jo Cavallo
When I was diagnosed with small cell lung cancer in 1992, at age 38, I remember thinking, “I wish I had breast cancer.” Breast cancer elicits such sympathy from people. A diagnosis of small cell lung cancer mainly gets you stern looks of disapproval and disappointment. There is so much stigma attach...
Having Stage IV Lung Cancer Has Refocused My Life
Frank Sierawski, as told to Jo Cavallo
The first indication I had stage IV lung cancer was a persistent cough during the beginning of the cold-and-flu season in the fall of 2013. I was 35 years old, never smoked, and in otherwise excellent health, so I ignored the cough for several months until I noticed my breathing had also become more...
Overcoming the Stigma of Small Cell Lung Cancer
Carol Tietz, as told to Jo Cavallo
Since my small cell lung cancer diagnosis in 2010, I’ve had to overcome not just the distress of having a life-threatening disease, but the stigma attached to it as well. I admit that I was a smoker. I was attracted to smoking when I was 16 and saw how “cool” people looked smoking in television and ...
Cancer Is Trying to Steal My Body, but I Will Not Allow It to Steal My Joy
Sheila McGlown, as told to Jo Cavallo
Until I was diagnosed with HER2-positive, estrogen receptor–positive/progesterone receptor–positive de novo metastatic breast cancer in 2009, I didn’t realize that Black women could get the disease. Although my mother died of metastatic breast cancer 5 years earlier when she was 65, she was the only...
I’m a Two-Time Breast Cancer Survivor, and the Experience Has Been Life-Altering
Terri Coutee, as told to Jo Cavallo
Even before my breast cancer diagnosis in early 2002, the year was shaping up to be life-altering for me and my family. We had moved from Seattle to Houston for a new career opportunity for my husband and were just settling into our new home when I felt a pea-sized nodule in my left breast during a ...
Facing the Trauma of Colorectal Cancer
Danielle Ripley-Burgess as told to Jo Cavallo
I first noticed blood in my stool when I was in the 8th grade. My mom and I did an Internet search and were relieved to find that the cause was most likely nothing more serious than hemorrhoids, so I put the problem out of my mind. I played volleyball and had an active social life, and the likelihoo...
I’m Alive by Sheer Force of Will—and a Lot of Luck
Marie Elaine Price-Lockridge, as told to Jo Cavallo
From the moment I felt a searing pain go through my right breast, I had a premonition that something was very wrong. Although I couldn’t feel anything unusual when I did a breast self-exam, I made an appointment with my gynecologist for a more thorough clinical breast exam and a mammogram. Because h...
Being Both a Cancer Provider and a Cancer Survivor Is a Rare Privilege
Raphael E. Pollock, MD, PhD, as told to Jo Cavallo
Perhaps my 35-year career as a surgical oncologist and researcher specializing in soft-tissue sarcomas should have prepared me to recognize the signs of chronic lymphocytic leukemia (CLL) when they first appeared a few days before Christmas in 2016, but it did not. In fact, my symptoms were so vague...
Breast Cancer Has Taught Me Many Life Lessons
Marci Greenberg Cox, as told to Jo Cavallo
In 2016, 2 years before I was diagnosed with stage III estrogen and progesterone receptor–positive, HER2-negative, invasive ductal carcinoma in situ in my left breast, I had felt a mass in my right breast that turned out to be a benign fibroid. When I felt a mass in my left breast one morning while ...
I Was Given a ‘Death Sentence’ at Just 17
Morgan Romero, as told to Jo Cavallo
A minor car accident I had with my mother when I was 17 probably saved my life. We were taken to the hospital for a routine checkup, and a subsequent chest x-ray found multiple nodules on my lungs. I underwent dozens of other imaging and blood tests, and finally, my pediatrician suggested my parents...
Cancer Has Taught Me to Live With Purpose
Mike Armstrong, as told to Jo Cavallo
I have had two life-threatening cancers over the past 3 decades and can say without equivocation that there is never a good time to get cancer. My first cancer diagnosis happened in 1992, just weeks after I had accepted the position of Chief Executive Officer of Hughes Electronics. The job meant a c...
What You Need to Know About Cancer and the Coronavirus
ELECTRA D. PASKETT, PhD, AS TOLD TO JO CAVALLO
As a three-time breast cancer survivor, when the COVID-19 pandemic hit the United States this past January, I knew I had to do everything I could to avoid getting the virus. A host of lingering side effects from my surgeries, chemotherapy, and radiation treatments have left me with cardiovascular ...
Grateful to Be Alive
Liza Marshall, as told to Jo Cavallo
Everything about my breast cancer diagnosis, from my presentation to diagnosis, was strange. In the spring of 2006, I was performing my monthly breast self-exam when I felt a hard lump in the upper left quadrant of my left breast. Having lost a good friend to breast cancer 4 years earlier, I was hyp...
I’m Living the Life I Was Destined to Have
David Hysong, as told to Jo Cavallo
At 33, I’m not living the life I had imagined for myself. If cancer hadn’t interrupted my plans, I would be serving in the United States Army Special Forces by now, a profession that was inspired by my father’s career as a military officer and helicopter pilot and one that I had dreamed about since ...
I Want to Live Long and I Want to Live Well
Susan Swanson, as told to Jo Cavallo
I’m a person who doesn’t like uncertainty. I’m also a worrier. So, when my hand kept going to the same spot on the upper part of my left breast near my chest wall, I couldn’t shake the feeling that something wasn’t quite right, which persisted even after a routine mammography failed to find any susp...
I Let Science, Not Emotion, Dictate My Treatment
Karen Peterson, as told to Jo Cavallo
I had my first experience with cancer when I was just 3 or 4 years old and complained to my mother that my “tummy hurt.” I was diagnosed with Wilms tumor, the same cancer my 18-month-old brother died of before I was born. I remember being in the hospital for weeks at a time and being known by family...
I Credit Cancer Research With Saving My Life
Retired Col. Gary R. Steele as told to Jo Cavallo
In December 2015, I thought I was through with cancer. I was diagnosed with prostate cancer in 2011 after a routine blood test showed that my prostate-specific antigen (PSA) level was high. I underwent prostatectomy, and although it was clear the cancer had breached the capsule of the prostate, for ...
Finding Hope With Cancer
Stephanie Walker, as told to Jo Cavallo
Sometimes there just is no escaping cancer. I thought I had done everything right. I was diligent about adhering to my annual physical exams, including mammograms, and routinely performed breast self-exams to spot any early changes in my breasts. Still, in the summer of 2015, I was diagnosed with ho...
My Life of Service to Other Cancer Survivors
Tristana Vásquez, as told to Jo Cavallo
Six months before my diagnosis of metastatic colorectal cancer, in 2016, at age 38, I told my mom, “I feel like I’m dying.” Even though more than 10 specialists I had seen over the previous 8 years for unexplained bouts of abdominal pain and bloating, fatigue, and constipation kept assuring me that ...
Staying a Step Ahead of Cancer
Jamil Rivers as told to Jo Cavallo
When I was diagnosed with metastatic breast cancer in 2018, my first thought was, I hope my three young children do not lose two parents to cancer. My husband, Ricky, had survived two bouts of cancer, early-stage colorectal cancer and, most recently, stage I kidney cancer. Like Ricky’s two previou...
Yes, Men Get Breast Cancer, Too
Kirby Lewis, as told to Jo Cavallo
You could call it a sixth sense, but the moment I felt a lump in my left breast I knew it was cancer, although it would take several weeks to confirm the diagnosis. When I saw my primary cancer physician and told him of my concern, he said: “Don’t worry. Men don’t get breast cancer; it’s a woman’s d...
My Age May Have Been a Barrier to Timely Diagnosis of Glioblastoma Multiforme
Adam Hayden as told to Jo Cavallo
I think my age and apparent good health contributed to a delay in my diagnosis of glioblastoma multiforme. The first symptom I had of the cancer appeared on December 26, 2014, when I was 32 years old. My family and I had just gotten home from celebrating the Christmas holiday with our relatives when...
Becoming Acquainted With Cancer
Patrick Beauregard as told to Jo Cavallo
Editor’s Note: The ASCO Post learned of the death of Patrick Beauregard due to colorectal cancer on September 6, 2020. Just weeks after my wedding in late summer of 2017, I had a sudden bout of abdominal pain so severe that it sent me to the emergency room. I was just 29 years old and in great phy...
My Inherited Condition Has Led to a Life and Career I Love
Mark A. Lewis, MD, as told to Jo Cavallo
My father died of thymic cancer when I was 14, and that’s when I decided to become an oncologist. Ironically, the first patient I diagnosed with cancer was me. In 2009, during my first week of training in hematology/oncology at the Mayo Clinic, I began having severe abdominal pain, which had plagu...
I’ve Turned My Pain Into a New Life Purpose
Scott Wilson, as told to Jo Cavallo
The first half of 2016 was arguably the most exciting of my life. My wife, Jaione, and I had decided to leave the United Kingdom and move with our two children, Andrew, then 14, and Alba, then 10, to Denver, where I was taking on a leadership role in corporate affairs for a brewery company. By the b...
I Refuse to Capitulate to Cancer
Paul Kalanithi, MD, as was told to Jo Cavallo
Editor’s note: We regret to announce that Paul Kalanithi, MD, passed away on March 9, 2015. Dr. Kalanithi was Chief Resident in Neurological Surgery at Stanford University when he shared his story, reprinted here, with The ASCO Post just over 1 year ago, in March 2014. We extend our deepest sympathi...
I Say ‘Yes’ to Life
Maureen Markham as told to Jo Cavallo
I have been a registered nurse for almost 5 decades and was completely unprepared to hear the words “You have stage IV lung cancer.” I think receiving the diagnosis was especially shocking because the symptoms I began experiencing in the summer of 2015, including some unusual weight gain, shortnes...
Having Cancer Has Not Affected Me in Any Negative Way
Radhakrishna Vemuri, MD, FACP, as told to Jo Cavallo
I have witnessed much sickness and death over my 35-year career as a medical oncologist. During the early years of my career, I had difficulty dealing with the sickness and death I witnessed on a regular basis. As a result, with help from the Hindu scripture of Bhagavad Gita, I have trained my brain...
A Diagnosis of Advanced Lung Cancer Is No Longer a Death Sentence
Xin Zheng, as told to Jo Cavallo
In hindsight, the symptoms I began experiencing in the winter of 2013, including pains in my chest and shoulders and a persistent cough, should have rung loud alarm bells. However, having undergone a pancreatectomy and splenectomy to cure a history of mucinous cystic neoplasms of the pancreas 5 year...
The Wake
Rashmi Chugh, MD
The ASCO Post is pleased to reproduce installments of the “Art of Oncology,” as published previously in the Journal of Clinical Oncology. These articles focus on the experience of suffering from cancer or of caring for people diagnosed with cancer, and they include narratives, topical essays, histor...
Facing Death and Appreciating Life
Trent E. Tipple, MD, as told to Jo Cavallo
I have had to come to terms with my own mortality three times in my life and I’m only 46. When I was 17, I was diagnosed with end-stage renal disease and experienced renal failure 2 years later. I underwent my first kidney transplant at 21, just before starting medical school. Finally, I thought my ...
I’m Not Too Young for Colorectal Cancer
Shawn Farrah as told to Jo Cavallo
The first symptoms I had of colorectal cancer—blood in my stool and abdominal pain—coincided with surgery I had to remove my appendix in the spring of 2017. My surgeon attributed the symptoms to the appendectomy and to the medications I received both before and after the surgery. In addition to thos...
My Future Is Doled Out in Increments of 6 Months
Chip Baldwin as told to Jo Cavallo
In the fall of 2015, I was looking forward to a trip to Florida for a visit with my daughter and her family, along with a little relaxation. The evening before the trip, I experienced some abdominal pain that my wife, Angela, and I thought might be appendicitis. Concerned the problem could jeopard...
Brain Cancer Prepared Me for the Isolation and Uncertainty of the COVID-19 Pandemic
Jeremy Pivor, as told to Jo Cavallo
The symptoms of low-grade oligodendroglioma first appeared in the summer of 2003, when I was 12, but they were vague enough—mild headaches and occasional weird sensations on my right side—to ignore. In the fall, I tripped and fell during a game of rollerblade hockey with my classmates and started co...
I Have Multiple Myeloma and Am Concerned About the Coronavirus
Tiffany H. Williams, as told to Jo Cavallo
In hindsight, the symptoms I began experiencing in the fall of 2013—sudden excruciating back bone pain and severe fatigue—should have tipped me off that I had a serious disease, but 7 years ago, they were easy to explain away. The bone pain was similar to what I had experienced several years earlier...
A Clinical Trial Saved My Life
MELINDA BACHINI, AS TOLD TO JO CAVALLO
In the fall of 2009, I began experiencing some abdominal discomfort, pain in my right shoulder, and severe fatigue that were easily explained away as the result of gallstones and by my career as a paramedic. I had many of the risk factors for gallbladder disease, and both my mother and sister suff...
Living A Full Life After Pancreatic Cancer
Marsha Edwards, as told to Jo Cavallo
I have been a radiologic technologist for 47 years, so after going to the bathroom one Sunday morning in October 2018 and finding my urine had suddenly turned dark, I knew something was wrong. I wasn’t in any pain and did not have a urinary tract infection, which would explain the discoloration of m...
I Wasn’t Prepared for the Emotional Turmoil of Breast Cancer
Carrie Kreiswirth as told to Jo Cavallo
Nearly a decade ago, my mother tested positive for the BRCA1 mutation; soon after, my twin sister and I were tested for the inherited defective gene, and I learned I, too, have the BRCA1 mutation. My sister is not a carrier of the mutation. Although there is a long history of both breast and ovarian...
Therapy Is Keeping My Metastatic Breast Cancer Manageable
Eva Joseph, as told to Jo Cavallo
Despite being vigilant about adhering to my annual schedule of screening mammography, in 2002, I was diagnosed with stage III triple-negative breast cancer. The diagnosis scared me, and I wondered if I was going to die. Determined to do what I could to survive the cancer, I underwent aggressive ther...
Cancer Has Made Me the Person I Am, and I’m Grateful
Tomma Hargraves as told to Jo Cavallo
The only clue that I was harboring a life-threatening cancer came as I was driving to a golf lesson in the fall of 2006, and I casually rubbed the left side of neck and felt a tiny bump. Although I wasn’t alarmed at the time, I did point out the mass to my primary care physician when I m...
