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Patient’s Corner

Breast Cancer

Why Are Black Women Still Dying at Higher Rates Than White Women From Breast Cancer?

Rev. Tammie Denyse, MDiv, MCL, as told to Jo Cavallo  /  May 10, 2022

What is so dismaying to me is that the statistic on survival for Black women with breast cancer has not changed since I was diagnosed with breast cancer 17 years ago. In 2005, Black women were 41% more likely to die of the disease than White women, even though Black women are less likely to be diagn...

Breast Cancer

Having Metastatic Breast Cancer Has Led Me to Focus on What Matters

Reverend Tawana Davis, PhD, as told to Jo Cavallo  /  April 10, 2022

Nothing can really prepare you for cancer, but it helped that I have dedicated my life in service to others as a minister and advocate for social justice and health equity in breast cancer survivorship. Before my own breast cancer diagnosis in 2016, I had spent years as a volunteer for several breas...

Genomics/Genetics

I Enrolled in the WISDOM Study and Learned I Am at High Risk for Cancer

Sally Luckett, as told to Jo Cavallo  /  March 25, 2022

I have always been interested in volunteering my services and helping others, so when I got an e-mail asking if I’d like to participate in the WISDOM (Women Informed to Screen Depending on Measures of Risk) study (www.thewisdomstudy.org) I signed on. The study plans to enroll 100,000 diverse women f...

Colorectal Cancer

Grieving the Loss of Sexual Intimacy as a Result of Cancer and Its Treatment

Aaron Martin as told to Jo Cavallo  /  March 10, 2022

About 5 years ago, I began experiencing some digestive issues that I initially blamed on the stress from coping with my mother’s diagnosis of Alzheimer’s disease. But after 2 weeks of unrelenting symptoms, including abdominal pain, a change in my bowel habits, and rectal bleeding, I saw my primary c...

Breast Cancer

As a Black Woman, I Knew I Had to Advocate for the Best Breast Cancer Care

Shannon Coleman, MA, as told to Jo Cavallo  /  February 25, 2022

When I got the call from the radiology department telling me I had to come back for a follow-up mammogram right before Christmas of 2020, I wasn’t surprised or initially concerned. I have dense breasts, and my first mammogram 2 years earlier had also detected suspicious areas in one of my breasts th...

Leukemia

After Two Cancer Diagnoses, I’m Grateful for Another Day

Loriana Hernandez-Aldama, as told to Jo Cavallo  /  February 10, 2022

The start of January 2014 was filled with excitement. I was undergoing fertility treatments to have a second child and was living my professional dream. I was a network news anchor and medical news reporter for a national broadcast network. Although I was exhausted from my grueling early morning sch...

Lung Cancer

Cancer Has Made Me a Risk-Taker, and That’s Good

Tiffany Fagnani, RN, as told to Jo Cavallo  /  January 25, 2022

In 2017, I was caring for my brother, who was suffering from respiratory failure due to complications from cerebral palsy, and working full-time as a registered nurse. I was feeling overwhelmed and exhausted all the time. I was also losing weight at an alarming rate—more than 70 pounds in just a yea...

Colorectal Cancer

I Don’t Know Why I Got Young-Onset Colorectal Cancer

Diego Davis-Olegário, as told to Jo Cavallo  /  December 25, 2021

Throughout my adolescence and early adulthood, I had been plagued with digestive issues, including bouts of gastritis and constipation, which seemed normal for me and wasn’t too concerning. But by the time I turned 30, in 2015, the acid reflux I had been experiencing became so frequent and uncomfort...

Lung Cancer

I’m Living—and Thriving—With Stage IV Non–Small Cell Lung Cancer

Janet Wohlmacher as told to Jo Cavallo  /  December 10, 2021

A diagnosis, in 2020, of stage IV adenocarcinoma non–small cell lung cancer (NSCLC) was found accidentally. I was 55 at the time and in the best physical shape of my life. I had spent the previous year and a half on a diet and exercise regimen that had rendered me 35 pounds lighter and feeling healt...

Sarcoma

From Cancer Survivor to Citizen Astronaut

HAYLEY ARCENEAUX, AS TOLD TO JO CAVALLO  /  November 25, 2021

When I was diagnosed with osteosarcoma of my left femur nearly 20 years ago, I remember telling my parents that I didn’t want to die. The diagnosis was terrifying because all the people I knew who had cancer had passed away, and I thought this cancer would kill me, too. That evening, my dad went onl...

Lung Cancer

The Worst Part of Having Cancer Was the Guilt

Tonie Forster, RN, PMHNP, DNP, as told to Jo Cavallo  /  November 10, 2021

When I was diagnosed with small cell lung cancer in 1992, at age 38, I remember thinking, “I wish I had breast cancer.” Breast cancer elicits such sympathy from people. A diagnosis of small cell lung cancer mainly gets you stern looks of disapproval and disappointment. There is so much stigma attach...

Lung Cancer

Having Stage IV Lung Cancer Has Refocused My Life

Frank Sierawski, as told to Jo Cavallo  /  October 25, 2021

The first indication I had stage IV lung cancer was a persistent cough during the beginning of the cold-and-flu season in the fall of 2013. I was 35 years old, never smoked, and in otherwise excellent health, so I ignored the cough for several months until I noticed my breathing had also become more...

Overcoming the Stigma of Small Cell Lung Cancer

Carol Tietz, as told to Jo Cavallo  /  October 10, 2021

Since my small cell lung cancer diagnosis in 2010, I’ve had to overcome not just the distress of having a life-threatening disease, but the stigma attached to it as well. I admit that I was a smoker. I was attracted to smoking when I was 16 and saw how “cool” people looked smoking in television and ...

Breast Cancer

Cancer Is Trying to Steal My Body, but I Will Not Allow It to Steal My Joy

Sheila McGlown, as told to Jo Cavallo  /  September 10, 2021

Until I was diagnosed with HER2-positive, estrogen receptor–positive/progesterone receptor–positive de novo metastatic breast cancer in 2009, I didn’t realize that Black women could get the disease. Although my mother died of metastatic breast cancer 5 years earlier when she was 65, she was the only...

Breast Cancer

I’m a Two-Time Breast Cancer Survivor, and the Experience Has Been Life-Altering

Terri Coutee, as told to Jo Cavallo  /  August 25, 2021

Even before my breast cancer diagnosis in early 2002, the year was shaping up to be life-altering for me and my family. We had moved from Seattle to Houston for a new career opportunity for my husband and were just settling into our new home when I felt a pea-sized nodule in my left breast during a ...

Colorectal Cancer

Facing the Trauma of Colorectal Cancer

Danielle Ripley-Burgess as told to Jo Cavallo  /  August 10, 2021

I first noticed blood in my stool when I was in the 8th grade. My mom and I did an Internet search and were relieved to find that the cause was most likely nothing more serious than hemorrhoids, so I put the problem out of my mind. I played volleyball and had an active social life, and the likelihoo...

Breast Cancer

I’m Alive by Sheer Force of Will—and a Lot of Luck

Marie Elaine Price-Lockridge, as told to Jo Cavallo  /  July 25, 2021

From the moment I felt a searing pain go through my right breast, I had a premonition that something was very wrong. Although I couldn’t feel anything unusual when I did a breast self-exam, I made an appointment with my gynecologist for a more thorough clinical breast exam and a mammogram. Because h...

Leukemia

Being Both a Cancer Provider and a Cancer Survivor Is a Rare Privilege

Raphael E. Pollock, MD, PhD, as told to Jo Cavallo  /  July 10, 2021

Perhaps my 35-year career as a surgical oncologist and researcher specializing in soft-tissue sarcomas should have prepared me to recognize the signs of chronic lymphocytic leukemia (CLL) when they first appeared a few days before Christmas in 2016, but it did not. In fact, my symptoms were so vague...

Breast Cancer

Breast Cancer Has Taught Me Many Life Lessons

Marci Greenberg Cox, as told to Jo Cavallo  /  June 25, 2021

In 2016, 2 years before I was diagnosed with stage III estrogen and progesterone receptor–positive, HER2-negative, invasive ductal carcinoma in situ in my left breast, I had felt a mass in my right breast that turned out to be a benign fibroid. When I felt a mass in my left breast one morning while ...

Head and Neck Cancer

I Was Given a ‘Death Sentence’ at Just 17

Morgan Romero, as told to Jo Cavallo  /  June 10, 2021

A minor car accident I had with my mother when I was 17 probably saved my life. We were taken to the hospital for a routine checkup, and a subsequent chest x-ray found multiple nodules on my lungs. I underwent dozens of other imaging and blood tests, and finally, my pediatrician suggested my parents...

Leukemia
Prostate Cancer

Cancer Has Taught Me to Live With Purpose

Mike Armstrong, as told to Jo Cavallo  /  May 25, 2021

I have had two life-threatening cancers over the past 3 decades and can say without equivocation that there is never a good time to get cancer. My first cancer diagnosis happened in 1992, just weeks after I had accepted the position of Chief Executive Officer of Hughes Electronics. The job meant a c...

COVID-19

What You Need to Know About Cancer and the Coronavirus

ELECTRA D. PASKETT, PhD, AS TOLD TO JO CAVALLO  /  May 10, 2021

As a three-time breast cancer survivor, when the COVID-19 pandemic hit the United States this past January, I knew I had to do everything I could to avoid getting the virus. A host of lingering side effects from my surgeries, chemotherapy, and radiation treatments have left me with cardiovascular ...

Breast Cancer

Grateful to Be Alive

Liza Marshall, as told to Jo Cavallo  /  April 25, 2021

Everything about my breast cancer diagnosis, from my presentation to diagnosis, was strange. In the spring of 2006, I was performing my monthly breast self-exam when I felt a hard lump in the upper left quadrant of my left breast. Having lost a good friend to breast cancer 4 years earlier, I was hyp...

Solid Tumors

I’m Living the Life I Was Destined to Have

David Hysong, as told to Jo Cavallo  /  April 10, 2021

At 33, I’m not living the life I had imagined for myself. If cancer hadn’t interrupted my plans, I would be serving in the United States Army Special Forces by now, a profession that was inspired by my father’s career as a military officer and helicopter pilot and one that I had dreamed about since ...

Breast Cancer

I Want to Live Long and I Want to Live Well

Susan Swanson, as told to Jo Cavallo  /  March 25, 2021

I’m a person who doesn’t like uncertainty. I’m also a worrier. So, when my hand kept going to the same spot on the upper part of my left breast near my chest wall, I couldn’t shake the feeling that something wasn’t quite right, which persisted even after a routine mammography failed to find any susp...

Breast Cancer
Immunotherapy

I Let Science, Not Emotion, Dictate My Treatment

Karen Peterson, as told to Jo Cavallo  /  February 25, 2021

I had my first experience with cancer when I was just 3 or 4 years old and complained to my mother that my “tummy hurt.” I was diagnosed with Wilms tumor, the same cancer my 18-month-old brother died of before I was born. I remember being in the hospital for weeks at a time and being known by family...

Prostate Cancer

I Credit Cancer Research With Saving My Life

Retired Col. Gary R. Steele as told to Jo Cavallo  /  February 10, 2021

In December 2015, I thought I was through with cancer. I was diagnosed with prostate cancer in 2011 after a routine blood test showed that my prostate-specific antigen (PSA) level was high. I underwent prostatectomy, and although it was clear the cancer had breached the capsule of the prostate, for ...

Breast Cancer

Finding Hope With Cancer

Stephanie Walker, as told to Jo Cavallo  /  January 25, 2021

Sometimes there just is no escaping cancer. I thought I had done everything right. I was diligent about adhering to my annual physical exams, including mammograms, and routinely performed breast self-exams to spot any early changes in my breasts. Still, in the summer of 2015, I was diagnosed with ho...

Colorectal Cancer

My Life of Service to Other Cancer Survivors

Tristana Vásquez, as told to Jo Cavallo  /  December 25, 2020

Six months before my diagnosis of metastatic colorectal cancer, in 2016, at age 38, I told my mom, “I feel like I’m dying.” Even though more than 10 specialists I had seen over the previous 8 years for unexplained bouts of abdominal pain and bloating, fatigue, and constipation kept assuring me that ...

Breast Cancer

Staying a Step Ahead of Cancer

Jamil Rivers as told to Jo Cavallo  /  December 10, 2020

When I was diagnosed with metastatic breast cancer in 2018, my first thought was, I hope my three young children do not lose two parents to cancer. My husband, Ricky, had survived two bouts of cancer, early-stage colorectal cancer and, most recently, stage I kidney cancer. Like Ricky’s two previou...

Breast Cancer

Yes, Men Get Breast Cancer, Too

Kirby Lewis, as told to Jo Cavallo  /  November 25, 2020

You could call it a sixth sense, but the moment I felt a lump in my left breast I knew it was cancer, although it would take several weeks to confirm the diagnosis. When I saw my primary cancer physician and told him of my concern, he said: “Don’t worry. Men don’t get breast cancer; it’s a woman’s d...

Head and Neck Cancer

My Age May Have Been a Barrier to Timely Diagnosis of Glioblastoma Multiforme

Adam Hayden as told to Jo Cavallo  /  November 10, 2020

I think my age and apparent good health contributed to a delay in my diagnosis of glioblastoma multiforme. The first symptom I had of the cancer appeared on December 26, 2014, when I was 32 years old. My family and I had just gotten home from celebrating the Christmas holiday with our relatives when...

Colorectal Cancer

Becoming Acquainted With Cancer

Patrick Beauregard as told to Jo Cavallo  /  October 25, 2020

Editor’s Note: The ASCO Post learned of the death of Patrick Beauregard due to colorectal cancer on September 6, 2020.  Just weeks after my wedding in late summer of 2017, I had a sudden bout of abdominal pain so severe that it sent me to the emergency room. I was just 29 years old and in great phy...

Solid Tumors
Pancreatic Cancer

My Inherited Condition Has Led to a Life and Career I Love

Mark A. Lewis, MD, as told to Jo Cavallo  /  October 10, 2020

My father died of thymic cancer when I was 14, and that’s when I decided to become an oncologist. Ironically, the first patient I diagnosed with cancer was me. In 2009, during my first week of training in hematology/oncology at the Mayo Clinic, I began having severe abdominal pain, which had plagu...

Colorectal Cancer

I’ve Turned My Pain Into a New Life Purpose

Scott Wilson, as told to Jo Cavallo  /  September 25, 2020

The first half of 2016 was arguably the most exciting of my life. My wife, Jaione, and I had decided to leave the United Kingdom and move with our two children, Andrew, then 14, and Alba, then 10, to Denver, where I was taking on a leadership role in corporate affairs for a brewery company. By the b...

Lung Cancer

I Refuse to Capitulate to Cancer

Paul Kalanithi, MD, as was told to Jo Cavallo  /  April 10, 2015

Editor’s note: We regret to announce that Paul Kalanithi, MD, passed away on March 9, 2015. Dr. Kalanithi was Chief Resident in Neurological Surgery at Stanford University when he shared his story, reprinted here, with The ASCO Post just over 1 year ago, in March 2014. We extend our deepest sympathi...

Lung Cancer

I Say ‘Yes’ to Life

Maureen Markham as told to Jo Cavallo  /  September 10, 2020

I have been a registered nurse for almost 5 decades and was completely unprepared to hear the words “You have stage IV lung cancer.” I think receiving the diagnosis was especially shocking because the symptoms I began experiencing in the summer of 2015, including some unusual weight gain, shortnes...

Lung Cancer

Having Cancer Has Not Affected Me in Any Negative Way

Radhakrishna Vemuri, MD, FACP, as told to Jo Cavallo  /  August 10, 2020

I have witnessed much sickness and death over my 35-year career as a medical oncologist. During the early years of my career, I had difficulty dealing with the sickness and death I witnessed on a regular basis. As a result, with help from the Hindu scripture of Bhagavad Gita, I have trained my brain...

Lung Cancer

A Diagnosis of Advanced Lung Cancer Is No Longer a Death Sentence

Xin Zheng, as told to Jo Cavallo  /  July 25, 2020

In hindsight, the symptoms I began experiencing in the winter of 2013, including pains in my chest and shoulders and a persistent cough, should have rung loud alarm bells. However, having undergone a pancreatectomy and splenectomy to cure a history of mucinous cystic neoplasms of the pancreas 5 year...

The Wake

Rashmi Chugh, MD  /  July 25, 2020

The ASCO Post is pleased to reproduce installments of the “Art of Oncology,” as published previously in the Journal of Clinical Oncology. These articles focus on the experience of suffering from cancer or of caring for people diagnosed with cancer, and they include narratives, topical essays, histor...

Head and Neck Cancer

Facing Death and Appreciating Life

Trent E. Tipple, MD, as told to Jo Cavallo  /  July 10, 2020

I have had to come to terms with my own mortality three times in my life and I’m only 46. When I was 17, I was diagnosed with end-stage renal disease and experienced renal failure 2 years later. I underwent my first kidney transplant at 21, just before starting medical school. Finally, I thought my ...

Colorectal Cancer

I’m Not Too Young for Colorectal Cancer

Shawn Farrah as told to Jo Cavallo  /  June 25, 2020

The first symptoms I had of colorectal cancer—blood in my stool and abdominal pain—coincided with surgery I had to remove my appendix in the spring of 2017. My surgeon attributed the symptoms to the appendectomy and to the medications I received both before and after the surgery. In addition to thos...

Lymphoma

My Future Is Doled Out in Increments of 6 Months

Chip Baldwin as told to Jo Cavallo  /  June 10, 2020

In the fall of 2015, I was looking forward to a trip to Florida for a visit with my daughter and her family, along with a little relaxation. The evening before the trip, I experienced some abdominal pain that my wife, Angela, and I thought might be appendicitis. Concerned the problem could jeopard...

CNS Cancers
COVID-19

Brain Cancer Prepared Me for the Isolation and Uncertainty of the COVID-19 Pandemic

Jeremy Pivor, as told to Jo Cavallo  /  May 25, 2020

The symptoms of low-grade oligodendroglioma first appeared in the summer of 2003, when I was 12, but they were vague enough—mild headaches and occasional weird sensations on my right side—to ignore. In the fall, I tripped and fell during a game of rollerblade hockey with my classmates and started co...

Multiple Myeloma
COVID-19

I Have Multiple Myeloma and Am Concerned About the Coronavirus

Tiffany H. Williams, as told to Jo Cavallo  /  May 10, 2020

In hindsight, the symptoms I began experiencing in the fall of 2013—sudden excruciating back bone pain and severe fatigue—should have tipped me off that I had a serious disease, but 7 years ago, they were easy to explain away. The bone pain was similar to what I had experienced several years earlier...

Hepatobiliary Cancer

A Clinical Trial Saved My Life

MELINDA BACHINI, AS TOLD TO JO CAVALLO  /  April 25, 2020

In the fall of 2009, I began experiencing some abdominal discomfort, pain in my right shoulder, and severe fatigue that were easily explained away as the result of gallstones and by my career as a paramedic. I had many of the risk factors for gallbladder disease, and both my mother and sister suff...

Pancreatic Cancer

Living A Full Life After Pancreatic Cancer

Marsha Edwards, as told to Jo Cavallo  /  April 10, 2020

I have been a radiologic technologist for 47 years, so after going to the bathroom one Sunday morning in October 2018 and finding my urine had suddenly turned dark, I knew something was wrong. I wasn’t in any pain and did not have a urinary tract infection, which would explain the discoloration of m...

Breast Cancer

I Wasn’t Prepared for the Emotional Turmoil of Breast Cancer

Carrie Kreiswirth as told to Jo Cavallo  /  March 25, 2020

Nearly a decade ago, my mother tested positive for the BRCA1 mutation; soon after, my twin sister and I were tested for the inherited defective gene, and I learned I, too, have the BRCA1 mutation. My sister is not a carrier of the mutation. Although there is a long history of both breast and ovarian...

Breast Cancer

Therapy Is Keeping My Metastatic Breast Cancer Manageable

Eva Joseph, as told to Jo Cavallo  /  March 10, 2020

Despite being vigilant about adhering to my annual schedule of screening mammography, in 2002, I was diagnosed with stage III triple-negative breast cancer. The diagnosis scared me, and I wondered if I was going to die. Determined to do what I could to survive the cancer, I underwent aggressive ther...

Lung Cancer

Cancer Has Made Me the Person I Am, and I’m Grateful

Tomma Hargraves as told to Jo Cavallo  /  February 25, 2020

The only clue that I was harboring a life-threatening cancer came as I was driving to a golf lesson in the fall of 2006, and I casually rubbed the left side of neck and felt a tiny bump. Although I wasn’t alarmed at the time, I did point out the mass to my primary care physician when I m...

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