Over the past decade, a prolific number of cancer memoirs have been published, and some have been award-winning bestsellers. When entering a crowded genre, it is best to have something that sets your story apart. Judith Dwyer Fugate did just that with a memoir about a rare tumor that has rarely if ever been featured in a published cancer memoir. Her style is also atypical among memoirists. She never waxes philosophical, nor does she attempt to bring pretty prose to the pages or give readers inspiration. Instead, she spools out an intimate and personal narrative, sharing her experiences as a person with a rare cancer and offering hope to others with cancer whom she calls her “fellow warriors.”
Memoirs of a Life Shattered: Living With & Through a Pancoast Tumor has its own peculiar merit, in that it is a month-by-month journey of a woman struggling against a formidable disease. In her own words, “I have a heart of gold, temper of a grizzly bear, curse like a truck driver, and have a warped and direct sense of humor.” These are traits, no doubt, that aided her cruel journey from diagnosis to survivorship.
Title: Memoirs of a Life Shattered: Living With & Through a Pancoast Tumor
Authors: Judith Dwyer Fugate
Publisher: Outskirts Press
Publication Date: August 2020
Price: $25.95, paperback; 248 pages
A Grim Diagnosis
Superior sulcus tumors, otherwise known as Pancoast tumors, are a relatively rare subset of non–small cell lung cancer. The tumor takes its name from the American radiologist who discovered them in 1932, Dr. Henry Pancoast. Although progress has been made in their treatment, the outcomes for people with this disease remain dismal, as the tumor is often misdiagnosed or diagnosed after the disease has spread, usually to the spine and ribs. Moreover, the tumor’s anatomic position and aggressiveness present with severe and unrelenting shoulder and arm pain. In short, in the world of cancer, a Pancoast tumor is one of the more challenging scenarios for both oncologist and patient.
In 2015, Ms. Fugate was a 53-year-old widow with three children and four grandchildren. She was divorced, and remarried. She was out of work and in debt.
In November 2015, she developed such severe pain in her upper right shoulder blade that it rendered her bedridden for a few days. The description of that pain event is vivid. Months later, on July 11, 2016, Ms. Fugate underwent magnetic resonance imaging. After the scan, she was driving home when she received a call from her doctor, saying she needed to see her right away.
“I thought it was odd, but that was it,” she writes. “I turned around and headed back to her office…. I do not remember anything she said after the word ‘cancer’ came out of her mouth. I pulled into the driveway as my husband was getting home. I showed him the picture and repeated what the doctor had said: ‘Cancer; it is called Pancoast.’ I was literally numb.”
Dealing Blackjack on Fentanyl
Memoirs of a Life Shattered is organized in the months from Ms. Fugate’s diagnosis in July 2016 to the beginning of posttreatment survivorship in December 2019. The author shares her emotions, frustrations, and observations. She tells of moving from doctor to doctor, detailing her “cocktail of cisplatin and etoposide,” nausea, and vomiting; the narrative brings the reader into the moment—her moment— and one cannot help but cheer for her.
Imagine, for example, this scenario: In the midst of her treatment, she lands a job as a blackjack dealer in a casino. “The pain was unbearable, and my oncologist put me on a fentanyl patch, which made me sick…. I had no clue of the side effects, and they kicked in when I was at work. Do you know how embarrassing it is to ask your boss … to cover your table because … you feel like you are gonna pass out?”
Hard Knocks and More
The doctors—and there are many—remain nameless, save for several nicknames bestowed by the author. This is a terrible disease, and it wreaked havoc on Ms. Fugate’s body, soul, and mind.
Several family members also die of cancer as she keeps her log, but she soldiers on. “I am getting another PET come June 2020. If nothing lights up, I am officially in remission and may discontinue treatment if I so desire…. I should have died in 2018, but, for some reason, I have been spared. Maybe to spread my story?”
Memoirs of a Life Shattered is recommended for readers of The ASCO Post who want a voyeur’s peek inside a tough woman’s daily struggle with a Pancoast tumor.