ASCO has launched the ASCO Survey on COVID-19 in Oncology Registry (ASCO Registry) to help the entire cancer community learn about the pattern of symptoms and severity of COVID-19 among patients with cancer, as well as how COVID-19 infections impact the delivery of cancer care and patient outcomes. The registry will collect both baseline and follow-up data on how the virus impacts care and outcomes throughout the COVID-19 pandemic and
Once sufficient patient data have been received and analyzed, ASCO will deliver periodic reports to participating practices and the broader public on key learnings, such as characteristics of patients with cancer most impacted by COVID-19; estimates of disease severity; treatment modifications or delays; implementation of telemedicine in the cancer treatment setting; and clinical outcomes among patients related to both COVID-19 and cancer. ASCO also plans to develop peer-reviewed manuscripts based on the data provided.
Participating practices will complete a baseline data capture form on each patient with cancer who has a confirmed infection of COVID-19 and subsequent follow-up information. Limited patient-identifying data will be collected in a secure way to make longitudinal analysis possible. Data from participating practices will be collected and securely stored on the CancerLinQ® platform. Additionally, CancerLinQ will be capturing data directly from participating practices on COVID-19 infection in their patients with cancer to allow for future analyses.
The Web-based registry is open to all U.S. oncology practices, including physician-owned, academic, hospital/health system–owned practices, and hospitals, and will collect data from patients with all types of cancer who are undergoing treatment.
The registry is part of ASCO’s dedicated efforts to provide the most current information and resources on COVID-19 to its members and the larger oncology community to help ensure that individuals with cancer receive high-quality care. ASCO has compiled a wide range of COVID-19 resources to support clinicians, the cancer care delivery team, and patients with cancer.
For information on the ASCO Registry, visit asco.org/asco-coronavirus-information.
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