On June 8, 2022, CancerLinQLLC, a wholly owned nonprofit subsidiary of ASCO, and HealthVerity, Inc., announced a collaboration that will create the nation’s premier real-world oncology data ecosystem to advance cancer care and research for government and public health agencies. The collaboration leverages HealthVerity’s Privacy-Preserving Record Linkage (PPRL) technology to make CancerLinQ oncology data fully interoperable with de-identified patient data from the nation’s largest ecosystem of health-care and consumer data providers. Qualified researchers will now have the ability to explore longitudinal patient journeys across a multitude of data types that better reveal the context around the origin, progression, treatment, and outcomes for a full breadth of cancer diagnoses.
With only 5% of patients with cancer participating in clinical trials, the use of real-world oncology data in research can help expand the pool of knowledge from which researchers can learn. CancerLinQ and HealthVerity allow researchers to learn from all patients with cancer—not only those enrolled in clinical trials—by providing access to broadscale, patient-longitudinal, real-world data that can provide researchers with a more comprehensive view of unique patient journeys.
Sean Khozin, MD, MPH
Andrew Kress
“CancerLinQ is driven by its goal of improving the care of every single patient with cancer,” said Sean Khozin, MD, MPH, Chief Executive Officer (CEO) of CancerLinQ. “To that end, this new collaboration helps us bring together disparate data sets that capture the longitudinal experience of patients with cancer, giving us the ability to unlock insights that inform high-quality, equitable patient care and research.”
“We are thrilled to be working alongside CancerLinQ to offer researchers a more comprehensive way to study the complex journeys of cancer patients,” said Andrew Kress, CEO of HealthVerity. “By leveraging the HealthVerity IPGE platform to connect real-world data sets in a HIPAA-compliant and privacy protected manner, we are creating an incredible opportunity for public health and government agencies to make the discoveries that could one day lead to cures for most forms of cancer.”
CancerLinQ has one of the largest and most-diverse real-world-oncology databases that include de-identified data from more than 6 million patients with cancer and benign hematologic conditions from all 50 states. The CancerLinQ network is a growing ecosystem of more than 100 cancer centers and community oncology practices.
The HealthVerity IPGE platform is an integrated technology and real-world data infrastructure platform based on four foundational elements—identity, privacy, governance, and exchange—that allow disparate data to be accurately resolved to unique privacy-protected identities, linked, and exchanged for a myriad of use cases.
To learn more about the collaboration and how you can access one of the nation’s largest interoperable de-identified real-world oncology data ecosystem, visit CancerLinQ.org.
© 2022. American Society of Clinical Oncology. All rights reserved.
